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Xfit for Cowden Syndrome

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Samantha Kelly

To raise money for PTEN research and awareness of the disorders associated. All done through a year of brutal yet fun (I hope) CrossFit

Raising money for
PTEN Research Foundation

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Total raised



Donations accepted until 08-06-2019

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May 2014 after years of poor health my daughter Charlotte had tonsils and adenoids removed. They were the largest the consultant had ever seen.
August 2015 I found two lumps in the front of her throat around her thyroid.
March 2016 her thyroid was removed and we were later told that she had a 2.5 cm malignant tumour on one thyroid and a 2cm benign tumour on the other.
May 2016 she had radioactive iodine treatment.
November 2016 we had the devastating news that she had Cowden syndrome and would be at a huge risk of cancer for the rest of her life.
April 2017 we were told she had chronic fatigue syndrome most likely as a result of all she had been through.
November 2017 Postural Orthstatic Tachycardia Syndrome was added to her diagnoses.

She is now 13 and unable to attend school or see her friends all of this stems from Cowdens


Event details

Xfit For Cowden Syndrome

 I have set myself a personal challenge I am committing to a minimum of 5 sessions of CrossFit a week for one year, each time I miss one I donate £5. no exceptions. I am also going to donate £10 each time I hit a personal best and £15 for each new skill I learn. 

How can you help?

I would love you to set yourself a challenge of your own choice, be it CrossFit, running, swimming or any activity. Set your own penalties for missed days. Or you could sponsor me on my challenge. Perhaps you could sponsor me to achieve a particular skill such as a handstand, or run a fundraising WOD at your box. I am really open to any ideas as to how you would like to help CrossFit for Cowdens.

Event date

08-March-2018 00:00  - 
08-March-2019 00:00

Event type

exercise challenge

17 days to event start


Donation by Janice and Katie
on 09-02-2018
£7.50 gift aid
Good Luck Sam.
Donation by Alison Hawkins
on 08-02-2018
£2.50 gift aid
Hope it helps. Such an important causr
Donation by M&P
on 07-02-2018
£37.50 gift aid
Hope you smash this target and raise even more and best of luck
Donation by Lewis connell
on 04-02-2018
£2.50 gift aid
Good luck Sam. What a great challenge and all the very best with it.xx
Donation by anne van't Hoff
on 01-02-2018
£12.50 gift aid
Good luck Sam
Donation by Thomas
on 31-01-2018
£0.00 gift aid
Donation by Joy
on 31-01-2018
Good luck Sam! I hope you reach your target and raise lots of awareness. You are an amazing family with amazing strength......not just CrossFit strength 😊 x
Donation by Kerry Ellis
on 28-01-2018
£5.00 gift aid

Donation summary

Online Donations: £295.00
Offline Donations: £0.00
Total Raised: £295.00
Total Raised
with gift aid:    £362.50

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