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Xfit for Cowden Syndrome

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Samantha Kelly

To raise money for PTEN research and awareness of the disorders associated. All done through a year of brutal yet fun (I hope) CrossFit

Raising money for
PTEN Research Foundation

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Total raised



Donations accepted until 08-06-2019

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May 2014 after years of poor health my daughter Charlotte had tonsils and adenoids removed. They were the largest the consultant had ever seen.
August 2015 I found two lumps in the front of her throat around her thyroid.
March 2016 her thyroid was removed and we were later told that she had a 2.5 cm malignant tumour on one thyroid and a 2cm benign tumour on the other.
May 2016 she had radioactive iodine treatment.
November 2016 we had the devastating news that she had Cowden syndrome and would be at a huge risk of cancer for the rest of her life.
April 2017 we were told she had chronic fatigue syndrome most likely as a result of all she had been through.
November 2017 Postural Orthstatic Tachycardia Syndrome was added to her diagnoses.

She is now 13 and unable to attend school or see her friends all of this stems from Cowdens


Event details

Xfit For Cowden Syndrome

 I have set myself a personal challenge I am committing to a workout 5 times a week for one year (anything CrossFit related), each time I miss one I donate £5. no exceptions. Payable at the end of the year.

How can you help?

I would love you to set yourself a challenge of your own choice, be it CrossFit, running, swimming or any activity. Set your own penalties for missed days. Or you could sponsor me on my challenge. Perhaps you could sponsor me to achieve a particular skill such as a handstand, or run a fundraising WOD at your box. I am really open to any ideas as to how you would like to help CrossFit for Cowdens.

Event date

08-March-2018 00:00  - 
08-March-2019 00:00

Event type

exercise challenge

Event already started


Just amazing, Sam - keep up your great work! x
Donation by Suzanne Wafer
on 02-11-2018
£0.00 gift aid
Donation by Us
on 15-09-2018
£6.25 gift aid
Donation by Vicki Oliver
on 15-09-2018
Keep it up. Maximum effort. RX +
Donation by David Atkinson
on 15-09-2018
£2.50 gift aid
Donation by A & L
on 03-09-2018
£7.50 gift aid
Keep going. You are amazing
Donation by M&p
on 03-08-2018
£12.50 gift aid
Well done on yesterday and reaching 100
Donation by M&P
on 08-07-2018
£12.50 gift aid
Awesome challenge for a great cause. Sending you best wishes from another PTEN family.
Donation by Jenni Collins
on 21-06-2018
£2.50 gift aid
Amazing and worthy cause, well done
Donation by Tony and Kerry
on 06-06-2018
£2.50 gift aid
Incredible! You're amazing and all an inspiration xx
Donation by Tina Wynne
on 04-06-2018
£0.00 gift aid

Donation summary

Online Donations: £1,025.00
Offline Donations: £0.00
Total Raised: £1,025.00
Total Raised
with gift aid:    £1,226.25

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