Skip to main content

Sam's Research Foundation

Fundraisers Profile image

Sam's Research Foundation

Sam's Research Foundation has been established to fund research that furthers understanding of & develops treatments for Prader-Willi Syndrome (PWS)

Raising money for
Prism the Gift Fund

Prism the Gift Fund Charity Logo

View charity profile

Total raised



Donations accepted until 31-08-2019

Donate now

View donation summary


In 2012 our son Sam was diagnosed with PWS.

A complex neuro-behavioural and medical condition, PWS affects people throughout their lives. Those with PWS need support in all areas of life including health, development, education and work. It's usually too difficult and dangerous for them to live as independent adults.

People with PWS present with some challenging behavioural, mental health, and medical issues including hyperphagia, which can lead to life threatening eating behaviour and obesity.

We're funding research into aspects of PWS that may lead to life enhancing treatments; growth hormone treatment has already been shown to have an enormous impact. We hope further research will lead to interventions which manage or substantially eliminate the behavioural or eating disorder elements of PWS.

Tony Holland CBE, Professor of Psychiatry, Cambridge University will lead the research, in collaboration with leading experts in the UK & US across various strands of research.

Event details

Sam's Research Foundation and Prism the Gift Fund

Sam's Research Foundation is a charitable fund that has been set up under the auspices of Prism the Gift Fund (charity no. 1099682).

You can either donate online, via cheque or via BACS. To donate on-line please click on the"Donate Now" button. For donations via BACS, or information on how to gift from abroad, please contact Morgan at Prism the Gift Fund on 020 7486 7760.

Please could you make out cheques to Sam's Research Foundation, and include your email address so that we can send you a Gift Aid declaration. Please send cheques to:

Morgan Kainth
Prism the Gift Fund
20 Gloucester Place
London W1U 8HA

Event date

12-August-2015 14:00  - 
31-August-2018 23:00

Event type

Ongoing Fundraising for Medical Research

Event already started


With all best wishes from us both!
Donation by Fran and Steve
on 19-02-2018
£75.00 gift aid
Donation by Anonymous
on 17-09-2017
£0.00 gift aid
Donation by Anonymous
on 16-09-2017
£0.00 gift aid
Donation by Anonymous
on 16-09-2017
£5.00 gift aid
I hope the race went well Robert!! It's an amazing effort for a very worthy cause. All the Best! Paul Lozada (Rebecca's dad 1S)
Donation by Paul (Rebecca's Dad 1S)
on 05-09-2017
£0.00 gift aid
Well done, Jo & Rob. Hope it all went extremely well. Biggest hugs to wonderful Sam, & much love to a brilliant family. Liz Chris & Jesse xxx
Donation by Liz
on 01-09-2017
£12.50 gift aid
a wee gift in the scallywags name :)
Donation by Anonymous
on 25-08-2017
£25.00 gift aid
A bit late, but hope the day went well. Anita
Donation by Anita Kidgell
on 15-08-2017
£5.00 gift aid
Donation by Anonymous
on 08-08-2017
£12.50 gift aid
Well done Jo, and for such a great cause!
Donation by Maila xx
on 07-08-2017
£3.75 gift aid

Donation summary

Online Donations: £59,325.00
Offline Donations: £89,894.00
Total Raised: £149,219.00
Total Raised
with gift aid:    £163,447.75

MyDonate is not responsible for the content fundraisers post on their pages, but if you see something you feel is offensive or inappropriate, please let us know