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Sam's Research Foundation

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Sam's Research Foundation

Sam's Research Foundation has been established to fund research that furthers understanding of & develops treatments for Prader-Willi Syndrome (PWS)

Raising money for
Prism the Gift Fund

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In 2012 our son Sam was diagnosed with PWS.

A complex neuro-behavioural and medical condition, PWS affects people throughout their lives. Those with PWS need support in all areas of life including health, development, education and work. It's usually too difficult and dangerous for them to live as independent adults.

People with PWS present with some challenging behavioural, mental health, and medical issues including hyperphagia, which can lead to life threatening eating behaviour and obesity.

We're funding research into aspects of PWS that may lead to life enhancing treatments; growth hormone treatment has already been shown to have an enormous impact. We hope further research will lead to interventions which manage or substantially eliminate the behavioural or eating disorder elements of PWS.

Tony Holland CBE, Professor of Psychiatry, Cambridge University will lead the research, in collaboration with leading experts in the UK & US across various strands of research.

Event details

Sam's Research Foundation and Prism the Gift Fund

Sam's Research Foundation is a charitable fund that has been set up under the auspices of Prism the Gift Fund (charity no. 1099682).

You can either donate online, via cheque or via BACS. To donate on-line please click on the"Donate Now" button. For donations via BACS, or information on how to gift from abroad, please contact Morgan at Prism the Gift Fund on 020 7486 7760.

Please could you make out cheques to Sam's Research Foundation, and include your email address so that we can send you a Gift Aid declaration. Please send cheques to:

Morgan Kainth
Prism the Gift Fund
20 Gloucester Place
London W1U 8HA

Event date

12-August-2015 14:00  - 
31-August-2018 23:00

Event type

Ongoing Fundraising for Medical Research

Event is completed


Loads of love from The Rossers xxx
Donation by Anonymous
on 13-06-2019
£12.50 gift aid
For a little guy with big potential🙌 To Sam with lots of love and cuddles. Iona xx
Donation by Iona
on 08-06-2019
£0.00 gift aid
For Jo’s 50th...Happy Birthday! X
Donation by Jonathan Salmon
on 18-05-2019
£12.50 gift aid
Dear Jo & Rob, You are doing such great work to support research into Prader-Willi Syndrome. Thank you for the ‘party of the century’! Julia 🎉⭐️💕
Donation by Julia Fern
on 17-05-2019
Happy birthday Jo. Much love, Jan, Steve & Marnie xx
Donation by The Willis Clan
on 12-05-2019
£25.00 gift aid
Donation by Lavinia, Simon, Scarlett and Amber
on 12-05-2019
With Love from The Eden Family
Donation by The Eden Family
on 10-05-2019
£0.00 gift aid
Big love from the Tom Braggins Trio xxx
Donation by The Tom Braggins Band
on 09-05-2019
£125.00 gift aid
With lots of love, The Mackenzie Family
Donation by Gavan & Sarah Mackenzie
on 06-05-2019
£0.00 gift aid
With lots of love for an inspirational family xx
Donation by Clare, Jerry, Thomas and Lucas Hill
on 05-05-2019
£25.00 gift aid

Donation summary

Online Donations: £61,445.00
Offline Donations: £89,894.00
Total Raised: £151,339.00
Total Raised
with gift aid:    £166,010.25

Donations closed

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