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Rox & Jake's London Marathon for VHL Disease!

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Roxanne Bonin

VHL stands for von Hippel Lindau Disease and is a rare genetic disorder, of which patients battle of series of benign and malignant tumours and cysts

Raising money for
VHL UK/Ireland

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Total raised



Donations accepted until 22-07-2018

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Rox & Jake will be taking on 26.2miles for VHL disease.

Rox's message: I will be running my first ever marathon for every person who battles VHL disease and their families who support them and go through the ups and downs too. I will also run thinking of anyone who has had a (or unfortunately not been able to have) Whipple procedure, as I am very grateful and lucky enough to be running this race 4 years post this op. I'm going to give the training and every 26.2 miles on the day my all and really appreciate your generous support and sponsorship, no matter how great or small. Thank you for being a part of this!

Jake's message: I'm running my first Marathon and putting in hundreds of miles of training for VHL. After witnessing the effects of this extremely rare disease can have within my own family, the mental and physical challenge of the training and race won't even come close to the strain VHL can have on those unlucky enough to live with it. I'm committed to giving it my all in training and on race day, there has already been some lovely runs in the rain, wind and snow. So please give generously, any amount really will be very much appreciated.

Event details

Rox & Jake 's London Marathon for VHL Disease!

Roxanne and Jake will be taking on their first ever marathon at the London Marathon on 22nd April 2018, raising awareness and funds for von Hippel Lindau Disease, a rare genetic disorder, throughout the 26.2miles. 

VHL stands for von Hippel Lindau Disease and is a rare genetic disorder, of which patients battle of series of benign and malignant tumours and cysts

Event date

22-April-2018 00:00  - 
22-April-2018 00:00

Event type

Running / Walking

35 days to event start


Run your little Hearts out!... Good luck! :-)
Donation by Philip Simpson
on 14-03-2018
£12.50 gift aid
Good luck to you both. Have fun!
Donation by Jane Chand
on 12-03-2018
£2.50 gift aid
Good luck
Donation by Judy wooding
on 05-03-2018
£2.50 gift aid
Run like the wind! Very proud of you 😊 x
Donation by Holly
on 04-03-2018
£5.00 gift aid
Best of luck guys xx
Donation by Brenda&Steve Robertson
on 04-03-2018
£0.00 gift aid
Good luck Rox and Jake, proud of you both xx
Donation by Paula & Dan
on 04-03-2018
£5.00 gift aid
Wishing you the best of luck in your run Roxanne!! love Sharon (Francesca's mum) xx
Donation by Sharon Jarrett
on 01-03-2018
£5.00 gift aid
Best of luck Rox & Jake...sure you'll smash it 😊 will be looking out for you on the tv! X
Donation by Frankie Bryant
on 28-02-2018
£2.50 gift aid
Great cause and well done for doing this.
Donation by Nilesh
on 27-02-2018
£7.50 gift aid
Sure you’ll both smash it!x
Donation by Rob
on 14-02-2018
£5.00 gift aid

Donation summary

Online Donations: £615.00
Offline Donations: £0.00
Total Raised: £615.00
Total Raised
with gift aid:    £761.25

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