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KLS - Sleeping Beauty - #PJS4KLS

Fundraisers Profile image

Matt, Helen, Jake, Phil & Beck Renouf

KLS - Sleeping Beauty - show your support!

Raising money for
KLS Support UK

KLS Support UK Charity Logo

View charity profile

Total raised
£57.00

Target
£100.00

57%

Donations accepted until 26-11-2015

Donations closed

View donation summary

About

KLS is a very rare medical condition and currently has no proven treatment, no cure and no answers and is not being researched by the medical community despite there being about 1000 cases world wide.

KLS causes people to have periods of extreme sleep and a reduction in cognitive function amongst other symptoms - no one know how long an episode will last, or how long it is till the next one - meanwhile people with the condition are rarely understood, and the UK charity desperately needs more money and awareness as there are only around 60 UK sufferers.

Event details

#PJS4KLS - KLS Extreme PJ Challenge

Our challenge is for everyone – the stereo typical image of Sleeping Beauty – someone who sleeps and sleeps missing out on a huge amount of time. Unlike Sleeping beauty – the world does not wait for KLS patients to wake. The world moves on – the patient misses birthdays, Christmas, school, work, driving tests, it is endless and those moments cant be replaced.

KLS is more than sleeping and is incredibly difficult to understand.
Sleeping Beauty – is the easiest image of KLS to share... suffering from KLS you might sleep anywhere...

So our challenge to you is to put on your P.J’s, wear them somewhere unexpected, video yourself and share it online ... dig deep in your wallet and help our son achieve his goal of raising support for KLS Support UK ...

“This is the KLS Extreme PJ Challenge... Kleine Levin Syndrome is more than a Sleeping Beauty disease – it is more than sleeping somewhere unexpected... and I nominate you to nominate someone else!” #‎PJS4KLS

Event date

26-August-2014 19:00  - 
26-August-2015 00:00

Event type

KLS Extreme PJ Challenge

Event is completed

Donations

Donation by Hannah
on 20-10-2014
£5.00
£1.25 gift aid
Chris, Michelle, Rhys & Grace all took part in the ice bucket challenge & decided that we would like to donate to KLS
Donation by Wilks/Hayward
on 01-09-2014
£12.00
£3.00 gift aid
Donation by Anonymous
on 30-08-2014
£5.00
£1.25 gift aid
I was nominated for the ice bucket challenge, so I am donating to KLS and hope a cure will be found. x
Donation by Rachel
on 27-08-2014
£5.00
£0.00 gift aid
I won £25.00 on Premium Bonds this month and I would like to donate it to KLS and pray they can come up with the answers soon. So please take up the PJs challenge if you can.
Donation by Grandma Mary
on 26-08-2014
£25.00
£6.25 gift aid
I put on my PJ's and shared my video for KLS - and it would be great if you would too!
Donation by Helen
on 26-08-2014
£5.00
£1.25 gift aid

Donation summary

Online Donations: £57.00
Offline Donations: £0.00
Total Raised: £57.00
Total Raised
with gift aid:    £70.00

Donations closed

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