KLS - Sleeping Beauty - #PJS4KLS
KLS is a very rare medical condition and currently has no proven treatment, no cure and no answers and is not being researched by the medical community despite there being about 1000 cases world wide.
KLS causes people to have periods of extreme sleep and a reduction in cognitive function amongst other symptoms - no one know how long an episode will last, or how long it is till the next one - meanwhile people with the condition are rarely understood, and the UK charity desperately needs more money and awareness as there are only around 60 UK sufferers.
#PJS4KLS - KLS Extreme PJ Challenge
Our challenge is for everyone – the stereo typical image of Sleeping Beauty – someone who sleeps and sleeps missing out on a huge amount of time. Unlike Sleeping beauty – the world does not wait for KLS patients to wake. The world moves on – the patient misses birthdays, Christmas, school, work, driving tests, it is endless and those moments cant be replaced.
KLS is more than sleeping and is incredibly difficult to understand.
Sleeping Beauty – is the easiest image of KLS to share... suffering from KLS you might sleep anywhere...
So our challenge to you is to put on your P.J’s, wear them somewhere unexpected, video yourself and share it online ... dig deep in your wallet and help our son achieve his goal of raising support for KLS Support UK ...
“This is the KLS Extreme PJ Challenge... Kleine Levin Syndrome is more than a Sleeping Beauty disease – it is more than sleeping somewhere unexpected... and I nominate you to nominate someone else!” #PJS4KLS
KLS Extreme PJ Challenge
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