RUNNING FOR RILEY AND FRIENDS SMS UK
so i have decided to do this half marathon for two reasons, one for myself and two for a very special little boy called Riley Pearson who happens to be a member of my family. Riley lives with Smith Magenis Syndrome (SMS).Riley is one of just over a hundred children and adults that have this syndrome in the uk. They need as mush help as possible so please help me raise as mush funds for Riley and friends as possible.
Cheltenham's Half Marathon
At 13.1 miles The Cheltenham's Half Marathon is set in the heart of this beautiful regency town and has been designed to show off its splendour and Cotswold charm The Smith-Magenis Syndrome (SMS) Foundation is a small UK registered charity that supports families, who have children of all ages, with Smith-Magenis Syndrome and provides information for professionals working with these families.Smith-Magenis syndrome is a genetic disability due to a microdeletion or abnormality of chromosome 17. The major features of Smith-Magenis Syndrome (SMS) include mild to moderate intellectual disability, delayed speech and language skills, distinctive facial features, sleep disturbances, and behavioural problems.As a charity we can offer literature, up to date research information and direct you to professionals experienced with Smith-Magenis Syndrome.We help to organise informal get togethers so members can meet other families.We also organise bi-annual conferences, where there are presentations from world wide experts in Smith-Magenis syndrome and the opportunity to talk to other parents about the many different aspects of life with Smith-Magenis Syndrome.
Running / Walking
Event is completed
LocationShared Finance Centre Evesham Road,
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with gift aid: £122.16
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