DADS LIVING WITH SMITH MAGENIS SYNDROME
A SMALL GROUP OF DADS THAT LIVE WITH SMITH MAGENIS SYNDROME IN THEIR FAMILY ARE DOING THE THREE PEAKS CHALLENGE,TO RAISE FUNDS FOR SMS UK FOUNDATION.
Raising money for
Smith-Magenis Syndrome Foundation UK
Donations accepted until 25-02-2019
We are a small group of dads that have come together to support each other.This is due to our children and young adults living with Smith Magenis Syndrome. we support each other in a number of ways but mainly by just chatting and relating to life experiences, so we have decided to take up the three peaks challenge, a challenge that will push us to the limit with next to no sleep this is something we are used to as it is part of the syndrome that our lovely children being diagnosed with. Smith-Magenis syndrome is a genetic disability due to a microdeletion or abnormality of chromosome 17. The major features of Smith-Magenis Syndrome (SMS) include mild to moderate intellectual disability, delayed speech and language skills, distinctive facial features, sleep disturbances, and behavioural problems.The behavioural problems can be exhibited in a variety of ways, frequent temper tantrums, meltdowns, impulsivity, anxiety, distractibility, aggression and self-injurious behaviours including self-hitting, self-biting, and skin picking.so please get behind this great team of dads who are trying to spread awareness for their children.
THE DADS SMS TEAM DO THE 3 PEAKS CHALLENGE
The 3 Peak Challenge is to trek the highest mountain in Scotland, England and Wales in one continuous attempt. The Three Peaks Challenge is one of the ultimate tests of physical endurance, mental stamina and effective teamwork.We will Walk through the physical fatigue as we trek over 25 miles of rough and rocky terrain, whilst battling against unpredictable weather conditions throughout. Ascending a total of almost 3500m,We will achieve something special that we will remember forever.Climbing Ben Nevis, Scafell Pike and Snowdon is a testing challenge but ultimately a highly rewarding adventure, which we will complete Without stopping. Ben Nevis 1345m (4413ft)Scafell Pike 978m (3209ft
Snowdon 1085m (3560ft)...wish us good luck we are going to need it. please support us by kindly donating to this fantastic cause, so we can raise awareness as well as fundraising to support family's in need of specialist equipment to care for children/adults living with smith magenis syndrome .thank you very much.
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with gift aid: £16,115.18
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