FSH Muscular Dystrophy is the third most common MD. Living and coping with this debilitating condition has a huge impact on families with all aspects of life being affected. Its severity can be hugely variable, for some it can result in weakness not only of facial muscles and shoulders/upper arms, but also of additional combinations from the neck, forearms, wrists, fingers, hips, legs, ankles and the back muscles. Often resulting in the need for a wheelchair and ventilation equipment, at its most severe it can be life limiting. Over the last five years, the MDC has invested over £100,000 to help fund work that has pinpointed the location of the mutation causing FSH. It is essential to fully understand the underlying cause of FSH and how it can progress to develop future treatments and cures. The MDC’s Action on FSH Appeal is supporting two critical research projects that will further our understanding of FSH. As well as this, £25,000 is needed to fund a new FSH registry in the UK.
Working together for a cure.....
The FSH-MD Support Group UK have joined forces with the Muscular Dystrophy Campaign to help raise funds for the
Action On FSH Appeal.
The Target is £45,000, we as a group are hoping to raise £10,000 in the next twelve months.
There are lots of ways to fundraise, everything from coffee mornings, car boots, to swimming with sharks and sky diving, and lots in between.
So put on your thinking caps and come and join in the fun.......
More information available at:
Event is completed
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