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This fundraising page is in support of

Action On FSH Appeal

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FSH-MD Support Group UK

Proud to be supporting the Action On FSH Appeal

Raising money for
Muscular Dystrophy UK

Muscular Dystrophy UK Charity Logo

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Total raised



Donations accepted until 01-01-2017

Donations closed

View donation summary


FSH Muscular Dystrophy is the third most common MD. Living and coping with this debilitating condition has a huge impact on families with all aspects of life being affected. Its severity can be hugely variable, for some it can result in weakness not only of facial muscles and shoulders/upper arms, but also of additional combinations from the neck, forearms, wrists, fingers, hips, legs, ankles and the back muscles. Often resulting in the need for a wheelchair and ventilation equipment, at its most severe it can be life limiting. Over the last five years, the MDC has invested over £100,000 to help fund work that has pinpointed the location of the mutation causing FSH. It is essential to fully understand the underlying cause of FSH and how it can progress to develop future treatments and cures. The MDC’s Action on FSH Appeal is supporting two critical research projects that will further our understanding of FSH. As well as this, £25,000 is needed to fund a new FSH registry in the UK.

Event details

Working together for a cure.....

The FSH-MD Support Group UK have joined forces with the Muscular Dystrophy Campaign to help raise funds for the
Action On FSH Appeal.
The Target is £45,000, we as a group are hoping to raise £10,000 in the next twelve months.
There are lots of ways to fundraise, everything from coffee mornings, car boots, to swimming with sharks and sky diving, and lots in between.
So put on your thinking caps and come and join in the fun.......
More information available at:

Event date

01-October-2013 00:00  - 
01-December-2016 00:00

Event type


Event is completed


After the death of Jean Claude Deret-Breitman (France)
Donation by Rechner Alain
on 15-12-2016
£23.75 gift aid
Merry Crimbo :)
Donation by Anonymous
on 13-12-2016
£7.50 gift aid
From collection box in local post office
Donation by Pam Skingle
on 13-07-2016
£0.00 gift aid
Merry Crimbo Donation :)
Donation by Martin Munro
on 07-12-2015
£12.50 gift aid
Money from collection box
Donation by Pam Skingle
on 10-11-2015
£0.00 gift aid
Merry Christmas for my selfie
Donation by Liz Williams
on 25-12-2014
£0.00 gift aid
£60 from raffle rounded up to £100 - Merry Christmas
Donation by Crafting 4 Causes
on 14-12-2014
£25.00 gift aid
Donation by Martin Munro
on 03-12-2014
£7.50 gift aid
Donation by Keith Skingle
on 20-10-2014
£2.50 gift aid
Tin emptied again :)
Donation by Martin
on 17-10-2014
£11.89 gift aid

Donation summary

Online Donations: £1,638.07
Offline Donations: £1,965.00
Total Raised: £3,603.07
Total Raised
with gift aid:    £3,895.43

Donations closed

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