2 events- 1st: Bike Ride for Gauchers Association
It’s difficult to envisage the difficulties & problems that occur when living with a rare disease such as Gaucher. I was born in 1963, and my mother having much experience with babies, she instinctively knew early on that something was wrong with me. It can take years for a correct diagnosis, but I was fortunate, as Gaucher is hereditary, (both my parents carried the Gaucher gene) 2 of my older brothers were diagnosed, and so it didn’t take long for the doctors to figure out I suffered from the same rare condition that had no cure. Not much was known about Gaucher disease when I was young, but thankfully over the years, the situation has changed considerably. Today there are several treatments available, doctors and hospitals are aware and educated about Gaucher disease, support groups exist around the world, and organisations raising funds to further research, which gives
hope to the 10,000 known sufferers around the world.
Ist - London-Cambridge Bike Ride
cont’d from Elaine: When growing up, I was never allowed to participate in sports at school, or own a bicycle for fear of having an accident and breaking my fragile bones. I always envied the other kids playing outside, speeding up and down riding their bikes. To this day, I have never learnt to ride a bicycle, so in a way, Madeleine is riding for me and I’ll be with her in spirit as she journeys from London to Cambridge.
... SO...and now from Madeleine - I am afraid this is my annual plea for - since last year- what has become 2 events in close proximity - a London-Cambridge Bike Ride for the Gauchers Association; followed by a Half Marathon in October 12th in the London Royal Parks. So I have 2 PAGES - this is the 1st, you can also go to https://mydonate.bt.com/fundraisers/madeleineabramson3
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with gift aid: £501.25
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