Running for VHL
Your donations will go to VHL UK/Ireland for research, to raise awareness of this condition and provide information and support for those affected.
Raising money for
On 18th September I shall be taking part in the London Duathlon. As many of you will know, I am not a runner! So, it’s been a bit of a struggle, but with a few weeks to go I am optimistic that I should be able to complete the course. In so doing I am hoping to increase awareness of von Hippel Landau disease and raise some money for VHL Uk/Ireland.
Michael, a close family friend, was diagnosed with VHL at 13 years of age. This is a rare genetic disease in which multiple tumours grow in certain parts of the body. It was Michael’s brain that was mainly effected and he underwent many neurosurgical operations over the next 13 years until he died recently at the age of 26. Michael lived his life as fully as he possibly could, passing his exams and going to university to study Architecture. Michael loved life and inspired those who knew him with his courage, determination and his sense of humour.
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with gift aid: £1,935.00
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