Lorna's London Marathon 2014
London Marathon April 2014 - hoping to raise as much money as possible for the SMS UK Foundation that helps my Auntie and my cousin, Ellen.
Raising money for
Smith-Magenis Syndrome Foundation UK
Donations accepted until 13-07-2014
My second marathon will be in London this April and my training is going well so I thought I'd put this race to good use and raise some money for a charity my Auntie and cousins benefit hugely from.
My cousin, Ellen, has a chromosomal syndrome called Smith Magenis Syndrome; which means she has learning and behaviour disabilities and the SMS Foundation offers great support to her and my Auntie and my other cousins.
I'd really appreciate any support you can give. Thanks a million!
Racing the London Marathon 2014
The SMS (Smith Magenis ) UK Foundation is a small charity dedicated to helping families who have a family member with SMS. SMS is a chromosomal syndrome that is rare ,though probably underdiagnosed. It has a myriad of symptoms though not all are seen in every person. The core problems are a learning disability,usually moderate to severe; severe behavioural disabilities and a reversed circadian rhythm, this means they have extremely poor sleep patterns. The Foundation supports families by running a conference every 2 years, organising and supporting regional get togethers as well as advice for families and professionals. We often write letters of support for families. Currently there are around 150 families in the UK. smith-magenis.co.uk is our website.
Running / Walking
Event already started
LocationLondon Marathon The Mall,
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with gift aid: £560.75
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