We lost our dear friend Mag on New Year's Eve. She was indebted to The 25% ME Group and asked for any donations in her memory to go to this charity.
Raising money for
The 25% ME Group
Mag suffered from ME for 25 years, severely for the last 15. She was an inpatient at the ME hospital in Romford in 2004, followed by a few months in a nursing home, before she was able to come home supported by carers. That was when she reached out to me through our local ME group, and our friendship developed. Visiting her was a joy. Despite tremendous suffering, a beautiful, fun-loving & indomitable spirit always shone through and we laughed a lot. Visits became fewer as she became unable to tolerate company, but this was no barrier to friendship - we continued with texts & voice mail. She had to be creative in her abbreviations to make texting as easy as possible, and HOITB! became our favourite - Hang On In There Baby! She sustained many close friendships despite these limitations and cared deeply for every one of us.
She developed a strong Christian faith and prayed for others in difficulty, becoming known as a 'prayer warrior' amongst friends. She was a huge support even when her own suffering was so much greater. In the end her symptoms became so intolerable that she took the brave decision to end her life. We all miss her loads but are relieved she is now at peace.
ME Awareness Week, 7 - 13 May 2018
I think Mag would approve of us commemorating her life and death by raising awareness of the isolation and suffering of people with the severest forms of this illness. She was incensed by the lack of support, understanding and awareness of very severe ME within the medical profession and social services, and angered by the lack of funding for biomedical research into the illness.
The 25% ME Group helped her with advocacy work, in particular when she was too unwell to make her claims for disability benefits herself.
The 25% ME Group represents those who are severely ill with ME (housebound, bedbound and isolated) and their carers.
The group offers practical and emotional support, advocacy, and fundraising to promote and support medical research, working in conjunction with ME Research UK (MERUK)
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with gift aid: £260.00
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