Our inspiration Grace is an amazing little girl that was born with a rare chromosome disorder called Smith-Magenis Syndrome. She has profound...
Raising money for
Smith-Magenis Syndrome Foundation UK
Our inspiration Grace is an amazing little girl that was born with a rare chromosome disorder called Smith-Magenis Syndrome. She has profound and multiple care needs and needs 24 hour care, she is unable to talk or eat and is fed via a tube, she also has severe scoliosis (curve in her spine) and struggles with her mobility, despite her daily struggles she is rarely without a smile and brings joy wherever she goes.
We are raising money for the Smith-Magenis Syndrome Foundation a charity that helps children and families living with this condition, they are a small charity that rely solely on fundraising and donations so every penny counts!
Great Midlands Fun Run 2016
I'm completing several races during 2017 for Smith-Magenis Syndrome Foundation UK
10k - April 2nd
8.5 miles - 4th June completing along with Grace and Family
Birmingham half marathon in October
Running / Walking
Event is completed
Find out more
with gift aid: £884.18
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