Our inspiration Grace is an amazing little girl that was born with a rare chromosome disorder called Smith-Magenis Syndrome. She has profound and multiple care needs and needs 24 hour care, she is unable to talk or eat and is fed via a tube, she also has severe scoliosis (curve in her spine) and struggles with her mobility, despite her daily struggles she is rarely without a smile and brings joy wherever she goes.
Various events in 2018
Family and Friends are coming together in 2018 to raise money for the Smith-Magenis Syndrome Foundation, a charity that helps children and families living with this condition, they are a small charity that rely solely on fundraising and donations so every penny counts!
April - Cathedral to Castle 10mile race
May - Great Birmingham 10K
June - Great Midlands Fun Run 8.5 mile
July - Beat the Boat 10k Race
Sept - Great North Run
October - Birmingham Half Marathon
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with gift aid: £1,408.16
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