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This fundraising page is inspired by

Jessica Sullivan

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Claire Sullivan

Raising awareness and funds in order to progress the research into Ring20 Chromosome Syndrome, in the hope that a treatment is identified.

Raising money for
Ring20 Research and Support UK CIO

Ring20 Research and Support UK CIO Charity Logo

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Total raised
£33,205.80

Target
£20000.00

100%

Donations accepted until 30-11-2018

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About

Our little girl, Jessica was diagnosed with Ring20 Chromosome Syndrome in August 2015.  A progressive and devastating condition, which impacts brain function and development; and causes intractable epilepsy.  Prior to this, Jessica was a very fit and active little girl.

Whilst a medical ketogenic diet is currently helping to control visible seizure activity, the challenge that we face is the inability to control one particular seizure type, non-convulsive status epilepticus.   These seizures can be described as unnoticed seizures or a 'twilight' state of confusion or lessoned awareness, which are difficult to recognise and can be mistaken for an absence seizure.

Until the mechanisms underlying the way seizures are generated in Ring20 are understood, Neurologists cannot successfully apply a targeted treatment for these types of seizures.

In order to make any difference to Jessica's long term quality of life, we therefore now embark on an ambitious fundraising schedule to raise funds for this much needed research.

Event details

Jessica's Ring20 fundraising events

We have scheduled a number of fundraising events over the course of the next 12 months.

The first event was a hugely successful Kids Halloween Disco which took place on Saturday, 28th October 2017.

Jessica took part in the Aviemore Santa Dash on Saturday, 16th December 2017 where she raised a fantastic total of £650.

Our interactive Race Night in February rased a fantastic £4,100 and Jessica's Ring 20 Gala Ball in April 2018 raised an astounding £16,100.

Next up is a two mile swim by Craig Burns on Loch Lomond.  Watch this space....

To follow our events please log on to our Facebook page, link below:

https://www.facebook.com/jessicasring20journey/

Event date

28-October-2017 13:00  - 
31-October-2018 00:00

Event type

Donation/sponsorship - number of events

Event already started

Donations

All the best in a roving the fund raising target! It’s for a great cause xx
Donation by Anonymous
on 03-05-2018
£100.00
£0.00 gift aid
For your journey xx
Donation by Margot and Megan
on 22-04-2018
All the best with your fundraising efforts.
Donation by Heather Manson
on 20-04-2018
£30.00
£7.50 gift aid
Good luck with the fund raising
Donation by Roy & Johanne
on 20-04-2018
£150.00
£37.50 gift aid
Kind donation following WEBATA Sportsmans Dinner that took place back in November
Donation by WEBATA
on 08-04-2018
£1,750.00
£0.00 gift aid
Donation by All the boys, girls and officers of the Airdrie, Coatbridge & District Battalion of the Boys Brigade
on 25-03-2018
£500.00
£0.00 gift aid
Donation by Jessicas friends at the Civic Centre
on 19-03-2018
£10.00
£2.50 gift aid
Donation by Jessica's friends at the Civic Centre
on 17-03-2018
£580.06
£0.00 gift aid
Good luck with the fundraising!
Donation by Andrew McAleese
on 14-03-2018
£20.00
£0.00 gift aid
Hope you get better Jessica Love Teigan x
Donation by Teigan Spittal
on 10-03-2018
£150.00
£37.50 gift aid

Donation summary

Online Donations: £12,555.80
Offline Donations: £20,650.00
Total Raised: £33,205.80
Total Raised
with gift aid:    £33,734.80

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