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Silence Challenge for Severe M.E

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Amanda Hendrie

The Silence Challenge for Severe M.E. was Amanda's idea. She is completely bed bound and unable to eat or drink anything, fed by a tube, laying...

Raising money for
The 25% ME Group

The 25% ME Group Charity Logo

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Total raised
£791.00

Target
£1000.00

79%

Donations accepted until 23-07-2019

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About

The Silence Challenge for Severe M.E. was Amanda's idea. She is completely bed bound and unable to eat or drink anything, fed by a tube, laying in the dark, suffering severe symptoms (including needing resus), looked after 24/7 by carers. She has also lost the ability to speak or move her facial muscles. So for Severe M.E. day she has challenged her carers and us to 24 hours no talking!
We are doing this to raise funds for the 25% M.E. Group (charity no. SC034265), a very small charity with only a few staff to cover the many people in this country in similar situations to Amanda. Unfortunately, the knowledge, care and support that should be provided by the NHS, Social Services and DWP is severely lacking, and the most severely ill and disabled are often the least able to fight for their basic rights without help. This charity has a huge workload and only a couple of part-time staff providing this much needed advocacy service, which is a lifeline to so many. Please help us by sponsoring those of us doing this Silence Challenge, or feel free to do your own sponsored Silence too! Thank you in advance for your donations. (Kiran).
 

Event details

Silence Challenge

Severe M.E Awareness and Remembrance day was begun by the 25% M.E. Group 6 years ago, and is marked on 8th August as this was the birthday of Sophia Mirza who had severe M.E. (Sophia was the first person to have M.E. recorded as the cause of death on her death certificate.)
The Silence Challenge started in 2016 and we intend to keep this going as a yearly challenge. All you have to do, is pick a day and try and spend 24 hours without talking! Looks easy but wait till you've tried it!
We'd like you to join us in taking part on 8th August, but feel free to do it any day in August. You can ask people to donate to this page, and follow our news on our Facebook page or twitter:
Facebook.com/silencechallengeforsevereme
Twitter #silencechallengeforsevereME
 

Event date

23-July-2018 00:00

Event type

Silence challenge

Event already started

Donations

Yes I know all too well the misery of dreadful NHS Services and the others you mentioned - I have lived with my form of M.E for three decades along with Complex-PTSD. There needs to be a change of better educated systems in place.
Donation by David McGough
on 13-08-2018
£10.00
£0.00 gift aid
Lots of hugs Mandy and all my love always xx
Donation by Dad
on 12-08-2018
£200.00
£0.00 gift aid
Well done everyone for taking part! Thank you 25% Group for all your support for Amanda and others like her x
Donation by Kiran and family
on 09-08-2018
£200.00
£0.00 gift aid
Much admiration, Amanda, for all you contend with. Thank you for your hard work in raising funds x
Donation by Anonymous
on 08-08-2018
£10.00
£0.00 gift aid
Thanks so much for doing this for the 25% Group Amanda. So good of you especially when you have so much to deal with yourself.
Donation by Geoff Allen
on 08-08-2018
Well done Amanda for setting this up, hope you get lots of support x
Donation by Paul Kayes
on 08-08-2018
£20.00
£0.00 gift aid
Donation by Rachel Hockey
on 08-08-2018
£20.00
£0.00 gift aid
Having had severe ME for over a decade, I know only too well the hell it brings. Luckily I am in recovery now and have regained 65% of my health back.
Donation by Natalka Mateszko
on 07-08-2018
£50.00
£0.00 gift aid
Well done Amanda for organising this. People are so ignorant of the suffering involved in having this illness it's so important to do whatever we can to educate them. Sending much love to you x
Donation by Sandra
on 06-08-2018
£20.00
£0.00 gift aid
Donation by Anonymous
on 06-08-2018
£10.00
£0.00 gift aid

Donation summary

Online Donations: £791.00
Offline Donations: £0.00
Total Raised: £791.00
Total Raised
with gift aid:    £791.00

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