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Charity description

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TOFS offers support and information to people born with Tracheo-Oesophageal Fistula or Oesophageal Atresia.
These are rare congenital malformaltions of the oesophagus (food-tube, or gullet) and trachea (windpipe), affecting about one in every 3,500 babies.

TOFS is a UK-based registered charity, relying entirely on donations and fundraising, as we receives no public-sector support at all.

Before the first successful operation in 1941, TOF/OA babies simply died. Nowadays, survival rates are high: but the neonatal surgery is a treatment, not a complete cure. Patients often suffer from a range of obscure, poorly understood complaints, sometimes for life.

TOFS offers (otherwise) hard-to-get information about living with the condition via our website. We send our members a member's pack which includes leaflets, badges and our latest newsletter, and thereafter our newsletter three times a year. Our members hear from leading health professionals at our annual conference, and benefit from meeting other TOF/OA families face-to-face at our social events, and online via our active social media.

Thank you so much for supporting TOFS and for helping us to support TOF/OA families in the UK and abroad.

Charity No: 327735

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