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Charity description

SOFT UK - logo
SOFT UK provides information and support to families affected by Trisomy 13 (Patau's syndrome) or Trisomy 18 (Edwards' syndrome), and related disorders.

  • SOFT UK provides information and support at all stages following a prenatal diagnosis - whether a family decides to terminate the pregnancy early or allow it to continue.
  • SOFT UK also supports those who are caring for a baby or child with these conditions, and families if a bereavement occurs.
  • As a membership organisation, families can share their experiences through the SOFT UK website, members' magazine and annual members' weekends.
  • The support is offered to all members of the family, including siblings of the affected child, for as long as required.

Charity No: 1002918

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