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Smith-Magenis Syndrome Foundation UK

Smith-Magenis Syndrome Foundation UK banner

Charity description

Smith-Magenis Syndrome Foundation UK logo
The Smith-Magenis Syndrome (SMS) Foundation is a small UK registered charity that supports families, who have children of all ages, with Smith-Magenis Syndrome and provides information for professionals working with these families.

The Foundation was first started as a support group in 1992, known then as the SMS Contact Group. By 1998 the group of families numbered 200, and we became the Smith-Magenis Syndrome Foundation.

Since the foundation began families have been put in touch with each other, professionals have been brought together and a common focus has developed. Research has focussed on many of the key aspects of Smith-Magenis syndrome – particularly genetics, sleep and behaviour.

Our objectives are:
* To preserve and protect the health and promote the relief of individuals affected by SMS and their families.
* To advance the education and knowledge of both medical professionals the general public about SMS and its implications for the family.
* To promote and support research into the management and affect of SMS.

Please donate to support our cause.

Charity No: 1072573

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