Smith-Magenis Syndrome Foundation UK
The Foundation was first started as a support group in 1992, known then as the SMS Contact Group. By 1998 the group of families numbered 200, and we became the Smith-Magenis Syndrome Foundation.
Since the foundation began families have been put in touch with each other, professionals have been brought together and a common focus has developed. Research has focussed on many of the key aspects of Smith-Magenis syndrome – particularly genetics, sleep and behaviour.
Our objectives are:
* To preserve and protect the health and promote the relief of individuals affected by SMS and their families.
* To advance the education and knowledge of both medical professionals the general public about SMS and its implications for the family.
* To promote and support research into the management and affect of SMS.
Please donate to support our cause.
Charity No: 1072573
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