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Noonan Syndrome Association

Charity description

Noonan Syndrome Association logo
Noonan Syndrome Association is a UK charity dedicated to supporting families and patients affected by Noonan Syndrome.

We aim to support families and patients affected by Noonan Syndrome by:
- A dedicated Noonan Nurse offering professional support and advice via a freephone helpline
- Providing key, up-to-date information specific to the condition
- Promotion of research into the causes, effects, diagnosis, treatment and relief of Noonan Syndrome.
- Raising awareness of Noonan Syndrome through events and media activity.

Charity No: 1140671

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