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Making it Better - The Daniel Courtney Trust

Charity description

Making it Better - The Daniel Courtney Trust logo
Making it Better - The Daniel Courtney Trust is a small charity aiming to fund research in to Microvillous Atrophy (MVA) - an extremely rare genetic disorder of the bowel.

Imagine your child is 'one in a million' for the wrong reason... you would do everything to make it better for them and others like them. At the moment there is no cure for MVA, but with your help there could be.

Our son Daniel had MVA. Home for him was hospital. Normality for him was procedures, tests, transfusions and tubes. Life was a constant struggle; his prognosis was poor. Nobody should have to see their child go through this or be faced with such uncertainty.

Daniel lost his battle for life due to complications after a liver/bowel transplant. It was, and still is, the only chance for children like him. But, it doesn't have to be like this. Please visit our website to learn more.

Charity No: 1111697

Find out more

Website
http://www.makingitbetter.org.uk
Facebook
http://www.facebook.com/group.php?gid=17777877024
Twitter
http://twitter.com/mibdct

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