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George Pantziarka TP53 Trust

Charity description

George Pantziarka TP53 Trust logo
Helping individuals and families with Li Fraumeni Syndrome and other TP53 disorders.

This site was established by the family of George Pantziarka, who suffered from Li Fraumeni Syndrome (LFS), and who died in April 2011 after suffering from his third cancer. It was only after George had been diagnosed with his third cancer that he was tested and found to be suffering from LFS.

Increase understanding of the condition among sufferers and their families

To support individuals and families with the condition

To increase awareness of the condition among doctors and to increase the rate of TP53 testing

To promote research into the condition and to look for treatments

To foster a feeling of community and to end the isolation that currently exists amongst sufferers and their families

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