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Emily's Star

Charity description

Emily's Star logo
We raise awareness of Trisomy 18 the UK's 2nd most common syndrome.
We support neonatal units in the UK by providing them with Emily's Gift Neonatal Boxes.
We support children affected by a life limiting or life threatening condition by holding monthly Stay & Play sessions & granting wishes

Our Objectives

1) To grant wishes to families who have a child or children with any life limiting or life threatening illness & are supported by a Children with Complex needs nursing team within Milton Keynes & Children with Trisomy 18 within the UK.
Our wishes are to help families make memories & we carry this out in various ways.

2) To raise awareness of Trisomy 18 also known as Edwards Syndrome, the UK's second most common syndrome.
We also wish to increase the use of the wording "life limiting" when a Trisomy 18 diagnosis is given instead of "incompatible with life"

3) To provide neonatal boxes to local neonatal units, which include items for both mum and premature or underweight babies. These boxes are called "Emily's gift"

Your support will help us achieve our objectives & help to keep Emily's Star shining brightly for years to come.

Charity No: 1152520

Find out more

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