Down's Heart Group
About 47% of babies born with Down's Syndrome also have congenital heart defects, which equates to one baby born every day in the UK. Down's Heart Group aims to provide parent-to-parent support and easy read information to help make the process easier for families and remove the feeling of isolation that many encounter.
Our service is available for families from the minute they know their child has (or will have) Down's Syndrome and heart problems, throughout their life and we also support those who are sadly bereaved. We have links with other related organisations in the UK and beyond as well as the UK heart hospitals and provide representation of the needs of our membership on many committees and forums.
All our trustees and staff have strong links with the learning disability community (most have a family member with Down's Syndrome) and are committed to using their knowledge and experience to help others.
Charity No: 1011413
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